{"image_url":null,"url":"https://marfan-info.hatenablog.com/entry/2019/07/25/093601","height":"190","version":"1.0","description":"What is the most important thing to do after receiving the diagnosis? After getting a diagnosis of Marfan syndrome, the most important things are to develop your healthcare team. \u30de\u30eb\u30d5\u30a1\u30f3\u75c7\u5019\u7fa4\u306e\u8a3a\u65ad\u3092\u53d7\u3051\u305f\u5f8c\u306b\u3059\u3079\u304d\u3053\u3068\u306f\u3001\u81ea\u5206\u5c02\u7528\u306e\u533b\u7642\u30c1\u30fc\u30e0\u3092\u4f5c\u308b\u3053\u3068\u3067\u3059\u3002 We do recommend echocardiograms or ultrasounds of the heart and having a cardi\u2026","blog_url":"https://marfan-info.hatenablog.com/","author_name":"marfan-info","author_url":"https://blog.hatena.ne.jp/marfan-info/","provider_name":"Hatena Blog","blog_title":"\u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates","title":"\u8a3a\u65ad\u78ba\u5b9a\u5f8c\u306b\u3059\u3079\u304d\u6700\u3082\u91cd\u8981\u306a\u3053\u3068\u306f\uff1f","published":"2019-07-25 09:36:01","provider_url":"https://hatena.blog","html":"<iframe src=\"https://hatenablog-parts.com/embed?url=https%3A%2F%2Fmarfan-info.hatenablog.com%2Fentry%2F2019%2F07%2F25%2F093601\" title=\"\u8a3a\u65ad\u78ba\u5b9a\u5f8c\u306b\u3059\u3079\u304d\u6700\u3082\u91cd\u8981\u306a\u3053\u3068\u306f\uff1f - \u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates\" class=\"embed-card embed-blogcard\" scrolling=\"no\" frameborder=\"0\" style=\"display: block; width: 100%; height: 190px; max-width: 500px; margin: 10px 0px;\"></iframe>","categories":["\u907a\u4f1d\u30ab\u30a6\u30f3\u30bb\u30ea\u30f3\u30b0"],"type":"rich","width":"100%"}