{"author_url":"https://blog.hatena.ne.jp/marfan-info/","provider_url":"https://hatena.blog","author_name":"marfan-info","type":"rich","published":"2020-08-03 20:25:29","title":"\u6804\u990a\u30fb\u4f53\u91cd\u30fbQOL\u306b\u3064\u3044\u3066\u3000\uff5e\u30d1\u30fc\u30c81\uff5e","blog_title":"\u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates","width":"100%","version":"1.0","url":"https://marfan-info.hatenablog.com/entry/2020/08/03/202529","image_url":null,"description":"2016\u5e745\u670822\u65e5Alix McLean Jennings \u79c1\u9054\u30de\u30eb\u30d5\u30a1\u30f3\u75c7\u5019\u7fa4\u306e\u5bb6\u65cf\u306b\u3082\u95a2\u308f\u308a\u306e\u6df1\u3044QOL\uff08\u751f\u6d3b\u306e\u8cea\uff09\u306e\u554f\u984c\u306b\u5bfe\u3059\u308bThe Marfan Foundation\u306e\u53d6\u308a\u7d44\u307f\u306b\u306f\u3001\u3068\u3066\u3082\u30ef\u30af\u30ef\u30af\u3057\u3066\u3044\u307e\u3059\u30029\u6b73\u306b\u306a\u308b\u30de\u30eb\u30d5\u30a1\u30f3\u306e\u5a18\u306e\u6bcd\u89aa\u3068\u3057\u3066\u3001\u73fe\u5728\u305d\u3057\u3066\u5c06\u6765\u306e\u5a18\u306eQOL\u306b\u3064\u3044\u3066\u65e5\u3005\u8003\u3048\u3092\u5de1\u3089\u305b\u3066\u3044\u307e\u3059\u3002QOL\u3068\u3044\u3063\u3066\u3082\u591a\u304f\u306e\u3082\u306e\u304c\u542b\u307e\u308c\u307e\u3059\u304c\u3001\u6628\u5e74\u79c1\u9054\u304c\u7279\u306b\u95a2\u5fc3\u3092\u6301\u3061\u3001\u7d20\u6674\u3089\u3057\u3044\u6210\u679c\u304c\u307f\u3089\u308c\u305f\u306e\u306f\u3001\u6804\u990a\u6442\u53d6\u3068\u4f53\u91cd\u5897\u52a0\u306b\u95a2\u3057\u3066\u3067\u3057\u305f\u3002 \u300c\u4f53\u91cd\u304c\u5897\u3048\u306a\u3044\u300d\u3053\u3068\u306f\u3001\u79c1\u9054\u306e\u30de\u30eb\u30d5\u30a1\u30f3\u30b3\u30df\u30e5\u30cb\u30c6\u30a3\u3067\u306f\u975e\u5e38\u306b\u5927\u304d\u306a\u95a2\u5fc3\u4e8b\u306b\u306a\u3063\u3066\u3044\u307e\u3059\u3002\u30de\u30eb\u30d5\u30a1\u30f3\u75c7\u5019\u7fa4\u306eFacebook\u30b0\u30eb\u30fc\u30d7\u3067\u306f\u3001\u300c\u3069\u3046\u3059\u2026","html":"<iframe src=\"https://hatenablog-parts.com/embed?url=https%3A%2F%2Fmarfan-info.hatenablog.com%2Fentry%2F2020%2F08%2F03%2F202529\" title=\"\u6804\u990a\u30fb\u4f53\u91cd\u30fbQOL\u306b\u3064\u3044\u3066\u3000\uff5e\u30d1\u30fc\u30c81\uff5e - \u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates\" class=\"embed-card embed-blogcard\" scrolling=\"no\" frameborder=\"0\" style=\"display: block; width: 100%; height: 190px; max-width: 500px; margin: 10px 0px;\"></iframe>","blog_url":"https://marfan-info.hatenablog.com/","height":"190","categories":["\u30d6\u30ed\u30b0","\u5c0f\u5150","\u6804\u990a"],"provider_name":"Hatena Blog"}