{"author_name":"marfan-info","blog_url":"https://marfan-info.hatenablog.com/","provider_name":"Hatena Blog","title":"\u6804\u990a\u30fb\u4f53\u91cd\u30fbQOL\u306b\u3064\u3044\u3066\u3000\uff5e\u30d1\u30fc\u30c82\uff5e","width":"100%","url":"https://marfan-info.hatenablog.com/entry/2020/08/07/215000","categories":["\u30d6\u30ed\u30b0","Q & A","\u5c0f\u5150","\u6804\u990a"],"html":"<iframe src=\"https://hatenablog-parts.com/embed?url=https%3A%2F%2Fmarfan-info.hatenablog.com%2Fentry%2F2020%2F08%2F07%2F215000\" title=\"\u6804\u990a\u30fb\u4f53\u91cd\u30fbQOL\u306b\u3064\u3044\u3066\u3000\uff5e\u30d1\u30fc\u30c82\uff5e - \u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates\" class=\"embed-card embed-blogcard\" scrolling=\"no\" frameborder=\"0\" style=\"display: block; width: 100%; height: 190px; max-width: 500px; margin: 10px 0px;\"></iframe>","image_url":null,"provider_url":"https://hatena.blog","published":"2020-08-07 21:50:00","blog_title":"\u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates","author_url":"https://blog.hatena.ne.jp/marfan-info/","description":"2016\u5e744\u67087\u65e5Hien Nguyen-Le \u5148\u65e5\u3053\u306e\u30de\u30eb\u30d5\u30a1\u30f3\u30d6\u30ed\u30b0\u3067\u3001Alix McLean Jennings\u3055\u3093\u304c\u6804\u990a\u58eb\u306e\u5148\u751f\u3068\u5354\u529b\u3057\u3066\u30019\u6b73\u306b\u306a\u308b\u30de\u30eb\u30d5\u30a1\u30f3\u75c7\u5019\u7fa4\u306e\u5a18Cassie\u3061\u3083\u3093\u306e\u4f53\u91cd\u3092\u5065\u5eb7\u7684\u306a\u30ec\u30d9\u30eb\u307e\u3067\u5897\u52a0\u3055\u305b\u305f\u304a\u8a71\u3092\u3054\u7d39\u4ecb\u3057\u307e\u3057\u305f\u3002\u4eca\u56de\u306e\u30d6\u30ed\u30b0\u3067\u306f\u3001Aix\u3055\u3093\u3068\u6804\u990a\u58eb\u306eHien\u5148\u751f\u3068\u306eQ&A\u306e\u524d\u534a\u90e8\u5206\u3092\u3054\u7d39\u4ecb\u3057\u307e\u3059\u3002 Q: \u9069\u5207\u306a\u6804\u990a\u3092\u53d6\u308b\u3053\u3068\u3067\u3001QOL\u306f\u3069\u306e\u3088\u3046\u306b\u6539\u5584\u3059\u308b\u306e\u3067\u3057\u3087\u3046\u304b\uff1f Q: \u6804\u990a\u304c\u304d\u3061\u3093\u3068\u53d6\u308c\u3066\u3044\u308c\u3070\u3001\u30b9\u30bf\u30df\u30ca\u304c\u6539\u5584\u3057\u3001\u75b2\u308c\u306b\u304f\u304f\u306a\u308a\u3001\u30d0\u30e9\u30f3\u30b9\u304c\u3068\u308c\u3066\u3044\u308b\u3068\u611f\u3058\u308b\u3088\u3046\u306b\u306a\u308b\u306e\u3067\u3057\u3087\u3046\u304b\uff1f Q: \u9577\u3044\u9593\u3001\u4f53\u91cd\u3092\u5897\u3084\u305d\u3046\u3068\u82e6\u52b4\u3057\u3066\u304d\u305f\u306e\u3067\u3001\u98df\u3079\u7269\u3092\u76ee\u306e\u6575\u306e\u3088\u2026","type":"rich","height":"190","version":"1.0"}