{"provider_name":"Hatena Blog","provider_url":"https://hatena.blog","height":"190","blog_url":"https://marfan-info.hatenablog.com/","author_name":"marfan-info","image_url":null,"title":"\u6804\u990a\u30fb\u4f53\u91cd\u30fbQOL\u306b\u3064\u3044\u3066\u3000\uff5e\u30d1\u30fc\u30c83\uff5e","published":"2020-08-16 22:24:50","type":"rich","blog_title":"\u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates","version":"1.0","description":"2016\u5e744\u670825\u65e5Hien Nguyen-Le \u5148\u65e5\u3053\u306e\u30de\u30eb\u30d5\u30a1\u30f3\u30d6\u30ed\u30b0\u3067\u3001Alix McLean Jennings\u3055\u3093\u304c\u6804\u990a\u58eb\u306e\u5148\u751f\u3068\u5354\u529b\u3057\u3066\u30019\u6b73\u306b\u306a\u308b\u30de\u30eb\u30d5\u30a1\u30f3\u75c7\u5019\u7fa4\u306e\u5a18Cassie\u3061\u3083\u3093\u306e\u4f53\u91cd\u3092\u5065\u5eb7\u7684\u306a\u30ec\u30d9\u30eb\u307e\u3067\u5897\u52a0\u3055\u305b\u305f\u304a\u8a71\u3092\u3054\u7d39\u4ecb\u3057\u307e\u3057\u305f\u3002\u524d\u56de\u306e\u30d6\u30ed\u30b0\u3067\u306f\u3001Aix\u3055\u3093\u3068\u6804\u990a\u58eb\u306eHien\u5148\u751f\u3068\u306eQ&A\u306e\u524d\u534a\u90e8\u5206\u3092\u7d39\u4ecb\u3057\u307e\u3057\u305f\u3002\u4eca\u56de\u306e\u30d6\u30ed\u30b0\u306f\u3001Q\uff06A\u306e\u5f8c\u534a\u90e8\u5206\u3067\u3059\u3002 Q: \u3084\u305b\u3066\u3044\u308b\u3068\u304a\u8179\u304c\u7a7a\u304b\u306a\u3044\u306e\u306f\u3069\u3046\u3057\u3066\u3067\u3059\u304b\uff1f Q: \u4f53\u91cd\u304c\u5897\u3048\u305f\u3089\u3001\u98df\u6b32\u306f\u5143\u901a\u308a\u306b\u306a\u308a\u307e\u3059\u304b\uff1f Q: \u304a\u8179\u304c\u7a7a\u3044\u3066\u3044\u306a\u3044\u6642\u3067\u3082\u98df\u3079\u308b\u306b\u306f\u3069\u3046\u3057\u305f\u3089\u3044\u3044\u3067\u3057\u3087\u3046\u304b\uff1f Q: \u80c3\u308d\u3046\u7ba1\u3092\u4ed8\u3051\u308b\u6642\u671f\u306f\u3069\u3046\u5224\u65ad\u3057\u307e\u3059\u304b\uff1f \u2026","html":"<iframe src=\"https://hatenablog-parts.com/embed?url=https%3A%2F%2Fmarfan-info.hatenablog.com%2Fentry%2F2020%2F08%2F16%2F222450\" title=\"\u6804\u990a\u30fb\u4f53\u91cd\u30fbQOL\u306b\u3064\u3044\u3066\u3000\uff5e\u30d1\u30fc\u30c83\uff5e - \u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates\" class=\"embed-card embed-blogcard\" scrolling=\"no\" frameborder=\"0\" style=\"display: block; width: 100%; height: 190px; max-width: 500px; margin: 10px 0px;\"></iframe>","author_url":"https://blog.hatena.ne.jp/marfan-info/","width":"100%","categories":["Q & A","\u30d6\u30ed\u30b0","\u5c0f\u5150","\u6804\u990a"],"url":"https://marfan-info.hatenablog.com/entry/2020/08/16/222450"}