{"type":"rich","image_url":null,"html":"<iframe src=\"https://hatenablog-parts.com/embed?url=https%3A%2F%2Fmarfan-info.hatenablog.com%2Fentry%2F2021%2F12%2F22%2F222658\" title=\"\u30de\u30eb\u30d5\u30a1\u30f3\u95a2\u9023\u75be\u60a3\u5150\u306e\u767a\u9054\u969c\u5bb3\u30fb\u884c\u52d5\u969c\u5bb3\u30fb\u5b66\u7fd2\u969c\u5bb3\u3000\uff5e\u30b9\u30c8\u30ec\u30b9\u3078\u306e\u5bfe\u51e6\u6cd5\uff5e - \u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates\" class=\"embed-card embed-blogcard\" scrolling=\"no\" frameborder=\"0\" style=\"display: block; width: 100%; height: 190px; max-width: 500px; margin: 10px 0px;\"></iframe>","title":"\u30de\u30eb\u30d5\u30a1\u30f3\u95a2\u9023\u75be\u60a3\u5150\u306e\u767a\u9054\u969c\u5bb3\u30fb\u884c\u52d5\u969c\u5bb3\u30fb\u5b66\u7fd2\u969c\u5bb3\u3000\uff5e\u30b9\u30c8\u30ec\u30b9\u3078\u306e\u5bfe\u51e6\u6cd5\uff5e","categories":["\u30aa\u30f3\u30e9\u30a4\u30f3\u30bb\u30df\u30ca\u30fc","\u30e1\u30f3\u30bf\u30eb"],"width":"100%","published":"2021-12-22 22:26:58","blog_url":"https://marfan-info.hatenablog.com/","height":"190","provider_url":"https://hatena.blog","version":"1.0","provider_name":"Hatena Blog","author_url":"https://blog.hatena.ne.jp/marfan-info/","url":"https://marfan-info.hatenablog.com/entry/2021/12/22/222658","blog_title":"\u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates","author_name":"marfan-info","description":"Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 24:05-27:49 All right, so what can you do? Here's, this is just kind of an outline and again in the Q&A we will get into more details. \u3067\u306f\u30b9\u30c8\u30ec\u30b9\u3078\u306e\u5bfe\u51e6\u6cd5\u306b\u3064\u3044\u3066\u304a\u8a71\u3057\u305f\u3044\u3068\u601d\u3044\u307e\u3059\u304c\u3001\u3053\u3053\u3067\u306e\u8aac\u660e\u306f\u6982\u8981\u306b\u3068\u3069\u3081\u3001\u8a73\u7d30\u306b\u3064\u3044\u3066\u306fQ&A\u3067\u56de\u7b54\u3057\u307e\u3059\u3002 Well, first of all one size never fits all\u2026"}