{"description":"Children with Marfan, Loeys-Dietz, and VEDS: More than Medicine 51:12-56:46 So I think I have a question, I think this goes along with role modeling that you were talking about, Allan, where like a parent wants to, once, wants to know how best to explain Marfan syndrome to their child. The child has\u2026","width":"100%","type":"rich","image_url":null,"published":"2022-01-20 22:45:26","height":"190","author_url":"https://blog.hatena.ne.jp/marfan-info/","blog_url":"https://marfan-info.hatenablog.com/","categories":["\u30aa\u30f3\u30e9\u30a4\u30f3\u30bb\u30df\u30ca\u30fc","Q & A","\u30e1\u30f3\u30bf\u30eb"],"title":"\u767a\u9054\u969c\u5bb3\u306e\u5b50\u3069\u3082\u306b\u30de\u30eb\u30d5\u30a1\u30f3\u306e\u3053\u3068\u3092\u4f1d\u3048\u308b\u306b\u306f","provider_name":"Hatena Blog","url":"https://marfan-info.hatenablog.com/entry/2022/01/20/224526","version":"1.0","author_name":"marfan-info","provider_url":"https://hatena.blog","html":"<iframe src=\"https://hatenablog-parts.com/embed?url=https%3A%2F%2Fmarfan-info.hatenablog.com%2Fentry%2F2022%2F01%2F20%2F224526\" title=\"\u767a\u9054\u969c\u5bb3\u306e\u5b50\u3069\u3082\u306b\u30de\u30eb\u30d5\u30a1\u30f3\u306e\u3053\u3068\u3092\u4f1d\u3048\u308b\u306b\u306f - \u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates\" class=\"embed-card embed-blogcard\" scrolling=\"no\" frameborder=\"0\" style=\"display: block; width: 100%; height: 190px; max-width: 500px; margin: 10px 0px;\"></iframe>","blog_title":"\u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates"}