{"title":"\u81e8\u5e8a\u8a55\u4fa1\u306e\u307f\u3067\u8a3a\u65ad\u78ba\u5b9a\u3057\u305f\u5834\u5408\u306e\u907a\u4f1d\u5b50\u691c\u67fb\u306e\u5fc5\u8981\u6027\u306b\u3064\u3044\u3066","author_url":"https://blog.hatena.ne.jp/marfan-info/","type":"rich","provider_url":"https://hatena.blog","published":"2026-01-02 11:46:48","width":"100%","version":"1.0","description":"What You and Your Healthcare Professionals Should Know About Marfan Syndrome - Webinar 56:47-57:39 Q: If my sibling has a confirmed genetic diagnosis for Marfan, do I also need to get genetic testing? My father and I were both diagnosed by physicians without genetic testing. Q: \u79c1\u306e\u304d\u3087\u3046\u3060\u3044\u306f\u907a\u4f1d\u5b50\u691c\u67fb\u3067\u30de\u30eb\u30d5\u30a1\u30f3\u3067\u3042\u2026","blog_url":"https://marfan-info.hatenablog.com/","image_url":null,"html":"<iframe src=\"https://hatenablog-parts.com/embed?url=https%3A%2F%2Fmarfan-info.hatenablog.com%2Fentry%2F2026%2F01%2F02%2F114648\" title=\"\u81e8\u5e8a\u8a55\u4fa1\u306e\u307f\u3067\u8a3a\u65ad\u78ba\u5b9a\u3057\u305f\u5834\u5408\u306e\u907a\u4f1d\u5b50\u691c\u67fb\u306e\u5fc5\u8981\u6027\u306b\u3064\u3044\u3066 - \u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates\" class=\"embed-card embed-blogcard\" scrolling=\"no\" frameborder=\"0\" style=\"display: block; width: 100%; height: 190px; max-width: 500px; margin: 10px 0px;\"></iframe>","url":"https://marfan-info.hatenablog.com/entry/2026/01/02/114648","author_name":"marfan-info","blog_title":"\u6d77\u5916\u30de\u30eb\u30d5\u30a1\u30f3\u60c5\u5831 | Global Marfan Updates","provider_name":"Hatena Blog","height":"190","categories":["\u30aa\u30f3\u30e9\u30a4\u30f3\u30bb\u30df\u30ca\u30fc","Q & A","\u691c\u67fb","\u598a\u5a20\u30fb\u51fa\u7523","\u907a\u4f1d\u30ab\u30a6\u30f3\u30bb\u30ea\u30f3\u30b0"]}