marfan-info https://blog.hatena.ne.jp/marfan-info/ 海外マルファン情報 | Global Marfan Updates https://marfan-info.hatenablog.com/ 遺伝カウンセリング Should I tell my child that he or she has the Marfan syndrome? I'm surprised when a parent doesn't want to use the word Marfan syndrome. We've had some instances where parents come in and before they've prepped us that they don't use the word Marfan syndrome. 私はご両親がマルファン症候群という言葉を使いたがらないことに驚いています。ご両親… 190 <iframe src="https://hatenablog-parts.com/embed?url=https%3A%2F%2Fmarfan-info.hatenablog.com%2Fentry%2F2019%2F08%2F01%2F182628" title="子どもにマルファン症候群のことを伝えるべきか？ - 海外マルファン情報 | Global Marfan Updates" class="embed-card embed-blogcard" scrolling="no" frameborder="0" style="display: block; width: 100%; height: 190px; max-width: 500px; margin: 10px 0px;"></iframe> Hatena Blog https://hatena.blog 2019-08-01 18:26:28 rich https://marfan-info.hatenablog.com/entry/2019/08/01/182628 1.0 100%