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  <blog_title>海外マルファン情報 | Global Marfan Updates</blog_title>
  <blog_url>https://marfan-info.hatenablog.com/</blog_url>
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    <anon>オンラインセミナー</anon>
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    <anon>小児</anon>
    <anon>ティーン</anon>
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  <description>Applying AHA's 2024 Scientific Statement: Navigating Diagnosis &amp; Management of Pediatric Aortopathy 54:55-58:37 Q: Here's a question that touches on the ethics of disclosing diagnosis. If an adult has genetically confirmed heritable thoracic aortic disease and they don't think their children need te…</description>
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  <provider_name>Hatena Blog</provider_name>
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  <published>2025-01-15 22:50:11</published>
  <title>子どもへの病気の告知について</title>
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